October - Down Syndrome Awareness Month

October - Down Syndrome Awareness Month

When Phanindra was born 36 years ago, our life changed direction. I set out to teach him — but he became my teacher instead. He taught me patience!

I lost my husband when he was just 7. Raising both my children alone, it was his journey that kept us steady. To this day, he keeps the best routine in the family, and is the one person we can always depend on.

Today he holds the keys to our house, runs the household, and is the reason for our happiness. He’s been a wonderful uncle too — teaching my granddaughters, through his gentle nature, what it means to be kind.

Our life didn’t go the way we planned.

He gave it purpose instead.

Roja,
Phanindra’s mother

October - Down Syndrome Awareness Month

I’m Arushi, Shaan’s sister, and I couldn’t have asked for a better brother. Shaan has always been a pure soul—funny, full of witty replies, and always making everyone laugh.
But on my wedding day, as I stood overwhelmed at the thought of leaving my family, we had all promised not to cry. Then, during my Vidai, Shaan walked up to me holding a flower. His usual laughter was gone; his eyes were filled with tears. He hugged me tightly, and in that moment, he couldn’t hide how much he would miss me. I broke down, and soon, everyone around us was crying too.
It was hard to believe that behind the boy who is always dancing, joking, and making everyone smile was a little brother with a heart so tender—one who could never imagine his world without his sister in it.

Arushi,
Sister of Shaan

October - Down Syndrome Awareness Month

My brother Mohit Krishna is my treasure and my biggest gift. He has down syndrome, but he never down’s anywhere. He taught me how to grow – like simple things like how to respect elders, how to eat, how to do simple activities. He is greatest gift for our family.I am so proud to being sister for this like lovable person.Love you Mohit bro forever 😍🥰💛

Little sister Rashmika

This October we will get to know more about our Self-advocates through people close to them. Let’s hear small stories that will warm our hearts and show us how smart and caring our Self-advocates can be.

If someone has a story to share about your self advocate, share it with us in about 100 words along with a photo of them together by Whatsapp 98400 60817.

Latest News

Making India proud

Sanju Harold is a talented athlete with Down syndrome from Ernakulam, Kerala, India. He has represented India at international sporting events and has achieved remarkable success across powerlifting, yogasana, roller skating, and bowling. International Achievements IPF Special Olympics World Open Equipped Powerlifting Championship held at…

Zoom Live Sessions

Atmanirbhar Health Policy

Atmanirbhar Health Policy is specially designed for Persons with Disability, Mental Illness and Persons with HIV/AIDS to cover Hospitalisation expenses. This insurance is available to persons between the age of 18 years and 65 years and Children from new born to 17 years….

Government Schemes for Persons with Intellectual Disabilities

(Autism, Cerebral Palsy, Intellectual Disability, and Multiple Disabilities)

The Government of India, through the National Trust and the Department of Empowerment of Persons with Disabilities (DEPwD), offers several welfare schemes that directly support individuals and families of persons with intellectual and developmental disabilities.

These schemes cover health care, lifelong residential support, day care, vocational training, and caregiver training.

Health Guideline Booklet

Down Syndrome Parents Guide

The Down's Syndrome handbook

Down but not out - Babli's Story

Nutrition Booklet for Down Syndrome Children

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About Us

Down syndrome federation of India bears the unique distinction of being the only centre of its kind in South India. And not just this, a lot of research programs, specialized outpatient services, and early intervention programs are also conducted and coordinated here.

Our vision is to facilitate a nurturing and supporting environment both within the family and in the society for individuals with Down syndrome and the mission to provide a long term rehabilitative, supportive and therapeutic service for individuals with Down syndrome.

Ms. Surbhi Agarwal

Thanks very much Rekha Maa & his team for giving us the opportunity to spread the awareness about trisomy 21 in Chhatisgarh. I request everyone on this group to be in touch & make the good society for our kids. We all try to take forward the task & vision which Rekha Maa wants for our kids.i would also like to thanks all the parents in this group. – Ms. Surbhi Agarwal, on Dr. Surekha Ramachandran and team’s visit to Raipur for a Camp for Persons with DS there.

Dr. Anurag Gupta Father of Aashi Gupta

Good morning Rekha Maa....u r a true Maa for thousands like us....It is our great fortune that you are in our lives as an unwavering guiding light. A lot of problems were discussed with your experienced team in detail and with immense empathy and concern. We returned home with new point of views and a light hearts that we r not alone. Rekha Maa Heartfelt Gratitude .

Dr. Nidhi Gupta, Mother of Aashi Gupta, person with Down syndrome

A very good morning maa... It was our good fortune to be amongst you.. Me and Aashi are missing Chennai already.. It was a very inspiring trip. On personal note, yes I have learned a lot from you and ur wonderful team. I was wondering what good causes had I created to be with you for almost a week.. We all are so touched by your hospitality n timely arrangement of doctor's appointment.. I am falling short of words to express my gratitude to your unconditional love, care n support maa..looking forward to seeing you again in Delhi.. Anurag n me are ever ready to do anything we can to work for greater purpose of helping our children n fellow parents.